Robin Wayman had never heard of glossopharyngeal neuralgia before being diagnosed with the condition in 2025.
The rare illness causes excruciating pain in the ears, jaw, tongue, and tonsils.
Wayman, 64, found a neurosurgeon in Atlanta who could treat the problem. She traveled from her home in Seymour, Tennessee, for pre-surgery tests and an appointment with the hospital’s business office.
A representative presented Wayman with a form stating the amount to be paid by her insurer, about $16,000, and the amount she would owe, about $4,000. She signed the statement and made an initial payment of more than $1,000.
A few weeks later, Wayman underwent a successful procedure. While recovering at home, she continued making payments to the hospital....